Comments on: Dyspraxia Awareness Week

By: Raelene

Raelene — Wed, 16 Jan 2008 02:33:55 +0000

along with alot of joy, there is pain bringing up a child with severe verbal and developmental Dyspraxia. My boy is 6 years of age and has being attending speech and OT since he was 2. He has little speech and we use makaton.
He attends year 1 this year and for the last 2 years, along with his teacher being fighting for Aid time, so he gets the best help whilst at school, Not only have we being fighting for my son to get it but for other children also. We would like Schools plus and education department to acknowledge Dyspraxia as a problem in our schools and allow one on one Aid time in school.
I have being working with Brendan Grylls, who has being willing to represent children with Dyspraxia and help me with my fight.
He would like to hear from more parents regarding their child/children, and issues with schooling and Dyspraxia, so our children get the help needed at school.
Brendan Grylls (MLA) phone:90411702
Parents please contact Brendan and voice your concern about your child attending school, he is a willing voice to support us!
Chin up to you all!
Take care.

By: Nicole

Nicole — Wed, 12 Dec 2007 11:05:32 +0000

My daughter is 7 and has been seeing a speech therapist since she was two. She still can’t read, write or talk well. We use makaton which has helped with the frustration. I wish we could get more help at school and even though the teachers are lovely they just don’t have the time and means to do as much as she needs. I just wonder if she will ever talk and live independantly. Why isn’t there more help!

By: corina

corina — Tue, 04 Sep 2007 06:06:31 +0000

My son was diagnosed as dyspraxic a month before he turned 4, his vocab consisted of 20 words and 90% of those words had multiple meanings such as sheishei meant finished, starwars, spiderman and buzz lightyear. He is now 5, has been seeing the speechie for over 12 months now, and even started Kindergarten which has improved his vocab amazingly as he also had a severe expressive lang delay. still a long way to go, as he still has problems with drooling and the LOUDNESS factor drives me NUTS! but its wonderfull to see how far he has come after years of silence!

By: Cath

Cath — Sun, 12 Aug 2007 11:59:34 +0000

Hi. My son is almost 7 and has been seeing a speech therapist since he was 3. He is diagnosed with dyspraxia and has very limited speech. He is in kindergarten, learns sign language but doesn’t always use this. He does understand very well but his verbal language is terrible. We are worried he is just never going to talk. Any other families have this problem with their dyspraxic children not talking.

By: Sassy

Sassy — Mon, 04 Jun 2007 09:33:37 +0000

My son (13) has been diagnosed with Dyspraxia since the age of 2 and a half. We then had another diagnosed that he was on the autistic spectrum even though my husband and I had trouble fitting him into this catagory. He is now 13 and suffering low self-esteem as learning difficulties continue also impacting on his social skills. Even though his speech and language have slowly improved over the years he still has poor articulation and poor grammar. Now we are hearing from professionals that he may not be autistic but only dyspraxic. This has opened up hope that his condition is treatable. I feel we may have overlooked therapies because of his diagnosis. Now I am researching schools that work with dyspraxic and dyslexic children but they all seem to be overseas- See http://www.fairleyhouse.org.uk and http://www.gow.org. We are starting speech therapy again after a year and a half break. The new therapist uses a program called PROMPT which is specifically for dyspraxia. We start tomorrow. If anyone knows any specific schools for dyspraxics, I would like to know. My advice is find a good developmental paediatrician early on and trust your own judgements.

By: Christine

Christine — Fri, 25 May 2007 11:32:24 +0000

I have been doing research on dyspraxia as I thought my son may have it, I have not had him dianosed yet but I truly think that from the information I have found that he has it. I also think that I may have it, if so it would explain a lot of things for me like speach problems, not being able to make friends, clumsy and not being able to consentrate or being good at school, hopefully we will get my son who is 10 treatment and understanding so he won’t go through the same problems as me

By: Leah Cox

Leah Cox — Mon, 26 Mar 2007 02:49:03 +0000

My son is almost 2 and has been seeing a Speech Pathologist for 6 months. Whilst there has been no diagnosis as of yet - we have discussed Dyspraxia in great deepths. She has mentioned that we need to monitor him for longer until she can be sure. What assistance is there besides his family and wonderful speech pathologist? Can any one point me in the right direction?

By: Tam Adams

Tam Adams — Fri, 16 Mar 2007 10:33:34 +0000

My 4yr has been doing ST for almost 12mnths although not formally diagnosed (Pediatrition has informally diagnosed this) He was ‘expelled’ from both daycare & our local preschool (ended up having to drive him 80km to attend a school) due to social behaviour problems that stem from his speech difficulties. He’s now back at daycare (tis remote centre that comes to our town once a week) and the new girls running it are going great with him, and we’ve found that keeping him really busy and being outstandingly POSITIVE (what his preschool teacher was lacking) has bought about a new kid! charles was really hard to breast feed and i gave up after 3months of heartbreak, and just today I’ve learned that this is an early symptom of dyspraxia which explains why i can easily feed my 5mth old daughter. if only it was found earlier could have prevented the mild Post Natal Depression and 4 yrs of blaming myself! I’m new to this condition and would love to know of any online forums or chat support groups with outher parents that are available.

By: Danielle Gauld

Danielle Gauld — Tue, 06 Feb 2007 00:03:09 +0000

Hi Peta. Don’t despair. My little girl started S.T. at 3 (she has Dyspraxia) (she just turned 9) - she still attends S.T. and will need to for a long time, but she has come a long way. We have always concentrated on her social skills, and confidence the rest will eventually come. At times my heart still breaks for Zoe. It sounds like Ella has a wonderful Mum, there is a lot of support out there! May the angels watch over you and your precious little girl!

By: Miles

Miles — Mon, 05 Feb 2007 10:06:00 +0000

Hi Peta, You haven’t left it too late, there’s no such thing. Ella will pick speech up quickly with the right help. i know it’s heartbreaking, but it gets better, believe me. Good luck!